Evie is 9 years old and has Cri du Chat syndrome
She enjoys scarves, her sensory box and playing on the trampoline
She enjoys listening to music and nursery rhymes
She has 2 cats called Billy and Leila and a dog called Buddy
She laughs when she is tickled and when playing movement or hiding games
Her family’s proudest moments are when Evie takes more steps towards becoming independent
Evie is younger in this photo. This photo was taken during a research study in 2009. Shared with permission.
Videos from when Evie was 4 show her starting the behaviour of self-biting and punching/grabbing others. 5 years on these behaviours are much worse and cause Evie lots of problems.
Evie has a lot of difficulties and behavioural issues but she is cheeky, funny and happy a lot of the time!