Ursula is 18 years old and has Cornelia de Lange syndrome
Her favourite colour is yellow
Her favourite animals are horses and she likes horse riding
She enjoys listening to music and playing with a mirrored twirly toy
Ursula laughs when her neck is tickled and when her family imitate the noises she makes.
Her family's proudest moment was when she first communicated.
Ursula is younger in this photo. This photo was taken during a research study in 2009. Shared with permission.
A funny moment was when Ursula was on a visit to a butterfly farm with school. Despite warning her to ignore the butterflies when they landed on them, Ursula promptly grabbed one with two fingers and squashed it.