Mental health and personal characteristics in Bardet-Biedl syndrome    
and syndromes associated with sight loss

Stage 1 Participant Information Sheets

Information for adults with BBS:

Information for parent/carer of an individual with BBS:

Accessible information for individuals with BBS:

Information for individuals with Alstrom Syndrome:

Information for parent/carer of an individual with Alstrom Syndrome:

Accessible Alstrom Syndrome Participant Information Sheet:

Appendix A: Transparency Statement

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