Research Projects
The following section contains details of research projects that are currently being conducted in individuals with rare genetic syndromes and neurodevelopmental disorders. The projects towards the top of the page are projects that are currently in need of participants. Click on the project to read more about it and find out if you can take part. At the bottom of the page you can find information about research projects that are ongoing that are no longer recruiting participants. These might be projects that have taken place within the last five years where results are currently being analysed or written up for publication. Click on the project to read more about the progress of this project or to download preliminary results.
Current | Smith-Magenis
Identification of emotional distress in individuals with moderate to profound intellectual disabilities
We are inviting parents/carers of individuals aged 4 years and older, with moderate-profound intellectual...
Current | Smith-Magenis
Sleep in Neurodevelopmental Disorders: Part Two
Sleep in Neurodevelopmental Disorders: Part Two *FOUR SLOTS LEFT TO FILL* Funded by Cerebra...
Current | Smith-Magenis
Exciting New Research in Autism
A new research study investigating mental health in people with autism is being launched...
Syndrome Tags
- Angelman 10
- Cornelia de Lange 10
- Cri du Chat 7
- Smith-Magenis 9
- Prader-Willi 11
- Fragile X 10
- Kleefstra 0
- Rubinstein-Taybi 0
- Lowe 0
Current | Smith-Magenis
New Study Looking at Non-Compliance in Children
Researchers at the School of Psychology, Queen’s University Belfast are looking for parents and...
Current | Smith-Magenis
PREDICTORS
PREDICTORS: Parent Resources for Decreasing the Incidence of Change Triggered Temper Outbursts The team at...
Archived | Smith-Magenis
Understanding Caregiver Experiences of Sleep Management Difficulties in Individuals with Smith-Magenis Syndrome
Researchers at the Cerebra Centre for Neurodevelopmental Disorders at the University of...
Archived | Angelman
Communication Pilot
Measuring communication in genetic syndromes: A pilot study Researchers at the Cerebra Centre for...
Archived | Angelman
Sleep Disturbances in Children with Neurodevelopmental Disorders
Funded by Cerebra from 2013 to 2016 Please note: This project has now...
Archived | Angelman
Self-injurious behaviour in non-verbal children
Background Self-injurious behaviour in non-verbal children, such as head banging, face slapping and self-biting,...