Get Involved - Research Projects

Three new exciting research studies in Prader-Willi syndrome from Belfast University

Three new research projects are being conducted by Kate Woodcock at Belfast University.  The first project looks at how people with Prader-Willi syndrome control their emotions and how this impacts on behaviour, the second project explores whether it is possible to use a computer game to help people with Prader-Willi syndrome develop switching skills, and the third project aims to develop resources to support families in strategies to help their children manage change more effectively.  You can find out more about Prader-Willi syndrome and why these projects are being conducted by visiting the Prader-Willi syndrome information pages.

Below you can watch short videos that have been developed specifically about these projects and download information sheets about these projects.


Study 1:  The Emotional Regulation Study

Download an information sheet for the emotional regulation study


Please note: data collection for study 1 has now finished and the results are being written up. 

Study 2:  TASTER:  Training Attention Switching for Temper Episode Reduction

Download an information sheet for the TASTER study


Study 3: PREDICTORS: Parent Resources for Decreasing the Incidence of Change Triggered Temper Outbursts

Download an information sheet for the PREDICTORS study


Please note: This study is open to caregivers of any child who has temper outbursts following changes. 

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