latest news
  • Gestures and communication in Cornelia de Lange syndrome

    A new paper has just been published by researchers at...

  • The Behavioural Phenotype of Cornelia de Lange Syndrome

    Presenter: Prof. Chris Oliver

    Date of presentation: 6th November, 2017


  • Sleep: A New Cerebra Guide for Parents

    A new guide for parents has been developed by researchers...

  • The Benefits of Communication Passports

    Research has shown that many behaviours that challenge...

Behavioural Characteristics in Lowe Syndrome

When people have a diagnosis of Lowe syndrome, it means that they are more likely to engage in certain behaviours than people without this syndrome. This is known as a ‘behavioural phenotype’. However, this does not mean that everyone with Lowe syndrome will show this behaviour and it is extremely important to remember that everyone with Lowe syndrome is an individual.

Understanding which behaviours are more likely to occur in Lowe syndrome means that parents, carers and professionals are in a stronger position to support a person because they can learn about why this behaviour is happening and develop interventions that are specific to people with Lowe syndrome.

The following sections describe a range of behaviours including:

Descriptions of each of these behaviours can be found in the corresponding subsections of this website, or you can visit the key topics pages to get a general overview of these areas.

Download this page as a PDF